About this Blog

This blog started as an online diary and place for me to rant about annoyances in my family.

However since July it has become a place for me to catalogue and express my views and opinions on the treatment I have recieved following the diagnosis of a potentially cancerous tumor in my bowel.

On 3rd August 2011 I was told that it was cancerous. In April 2012 I was given the all clear.

October 15th 2013 I was diagnosed with peritoneal disease and liver metastases. The cancer was back and this time it is inoperable.

It is a little bit out of date as the NHS doesn't tend to have a WiFi connection in hospital and I can only post when I get home and posts take a while to write.

It is NOT about individuals or the nursing profession. It is about some of the inadequacies in the system and the way the NHS is failing some people.

For more inane ramblings, follow me on twitter

To see my crafty loves follow me on Pinterest
Follow Me on Pinterest

Why not like my new Facebook page
http://www.facebook.com/thepoohstickqueen" data-layout="standard" data-action="like" data-show-faces="true" data-share="true">

Or follow my photographic craziness on instragram
Instagram

Sunday, 14 September 2014

Silent Sunday


Thursday, 11 September 2014

WILL Power!

Since 1997, my finances have been a little bit on the ropey side.  This was worsened when I met Ruth in 1998.  Spending increased and to be fair so did income; but at the same rate!  We lived reasonably comfortably in Newcastle after our student days and also when we moved down to Sussex too.  There was enough money for everything we needed but nothing left over for a rainy day.  

This was the same until the turn of this year.  Ruth became entitled to higher amounts of benefits and for once we had more coming in than we could spend.  I am in the process of tweaking the income and expenses so that we do not have to go without and there is money available for the kids to enjoy being kids.

But essentially this is all background noise, the main thing I want to put out there is around the finances of death.  Not a great or gripping read (or write) I must say but all the same, we are all going to die!

So what can you do to make life easier for those who are left behind?

1. Make a will - Seriously, make a will, I am in the process of doing mine now it's cost £120 via my bank but will save a lot of time and effort when the time comes to execute it.
2. Put as much into joint names as possible - this means that it automatically goes to your partner in the event of the worst happening.  Fortunately for us, nearly everything was in joint names!
3. Even put the kids accounts into joint names! - Halifax forced me to close the kids accounts and wanted me to bring in their ID again to reopen them!  Doubtless to say, I closed them, then moved them to another more(?) caring(??) bank!
4. Make a list of your financial holdings - obscure bank accounts, online shopping accounts, anything that has a value - makes it easier to track it down.  Also a list of passwords for your digital life will make life easier for those you leave behind.  Ruth had the foresight to email me a list of passwords when she moved into the hospice.
5.  Did I say, MAKE A WILL????

The benefits system is great in this country but they don't come to you, you need to approach them and tell them what has happened.  The only time they come to you is if you or your former partner owes them money!  Again people like the hospice and MacMillan are very supportive but you need to ask.  With all of the offers of help you get at this vulnerable time, what you really need is specific offers of help and not just the generic ones.  

I have joined a support group whom I will eventually meet up with others like me through but there is a very good list on there of things to say and not to say to a widow!  


This leads quite nicely onto the next section in this little story, coping with / dealing with and moving on.  Until then. MAKE A WILL!!!

Sunday, 7 September 2014

Rocks

I love rocks, I studied Geology at college and since then they have amazed me in the different textures and types there are that form our world.  Interestingly as I write this there has been a fascinating bit on Countryfile about the canals in the Midlands through the limestone quarries and caves, stunning and something I would love to see sometime.

Then you have the "human" rocks, the ones that have helped me to re-start my families lives.  Please do not feel offended if you are not on this list!

Joanne - My sister in law, someone who has been totally selfless in helping me with the initial bits of the funeral, for being there at the end, for coming to the pub with me and being exceptional with the kids.

Mum B - Putting her life on hold to come over and help with family life from the start of June until September.  Only today has she had the burden of the 3 kids lifted from her shoulders.  One thing is for sure, I would not have had to confidence or drive to clear as much of the house so quickly without her help and support.  I hope you have a lovely week in Blackpool x.

Martin, Phil, Becky & Jamie - For being there throughout this whole ordeal, for helping with the kids all summer and being genuinely nice guys and gals.

Sharon - For organising a lovely afternoon in Taunton for the "Western connection" towards the end of August, a fitting afternoon and possibly the first time ever I have chain drank cups of coffee (Thanks to Pauline & Sandra for lining the drinks up!).

Mum H - For your continuing support and offer to help with the kids on a daily basis going forward.

The School Mums - I would love to name you all, but for my own safety and not missing anyone out I am not going to! - Accepting me and talking to me and making me feel welcome in the playground, it is not just the kids who are intimidated by all the people in the morning - many many lovely ladies and ever so nice :)

The "Camden" Crew, the ones who helped plan and lay on a wonderful send off for Ruth in Crawley after the funeral.  The amount of personal effort that went into that is a testament to all of you and made it a special day.

I was asked if I was seeing a councillor by someone recently, to which I said, "Well yes and no".  You see I talk in the real world about what's happening in my life.  Since being back at work; I have done 6 weeks now, I probably have discussed my situation with 50 odd managers.  All are great listeners and some provide some excellent advice.  

Today is also a very poignant day too, as it was this day 12 years ago that myself and Ruth said "I do".  

So until next time when I will rant about finances, love to you all xxx

Friday, 5 September 2014

So, yesterday was talking about Day 0, today is logically the first day after Ruth died.  

There are many things that you say to your children that you don't want to; "Stop That!" probably being the number 1 offender.  However there is something that you never want to have to tell them and that is that their mother has died.  This was my task on the 21st June 2014.  I had been lent a book about Water Beetles and Dragonflies and this seemed to put it into a good context for me to help my kids understand. Isaac had stayed at his friends house overnight, so I went to pick him up and tell him.  His , reaction was that of total shock, then the tears.  Imogen too had stayed at a friends and she didn't come home until the afternoon.  I took her upstairs and seeing her face melt with the words that I was saying was, well, heartbreaking.

The next few days all seemed to blur into one.  All I can tell you is that the funeral was planned, financial affairs were started to be put into some sort of order (more about this at a later date) and life, well it just carried on.  Isaac went back to School on the Monday, then the Tuesday was his birthday.  Imogen & Hope went to the childminder as planned and then Imogen went to pre-school on the Wednesday.

Gradually the family migrated back westward, Martin first, then Jo and last but not least the fabulous Barbara.  I will talk about rocks of various types in my next post.  Until then, love to you all xx

Thursday, 4 September 2014

I have decided that the best thing that I can do, for myself and the children and in the memory of Ruth, my wife to carry on this page.  I intend to write about how the kids are doing more than me, but this opening post from me is about one day, Day 0.  Lots of love, Anthony.

Everyone says I am doing well.  I hope I am and gradually things are getting back together.  A thick skin and a great smile put the illusion on that all is under control.  Getting the call from my boss to ring the hospice that your wife needs me urgently is not the call anyone should get. Less than 24 hours earlier Ruth was fine, well chatty and apparently over the funny turn she'd had earlier that day. Emotions ran wild, I grabbed my bag and ran for the door stopped briefly on the way out to tell the deputy manager I had to go. In the car I rang my mother in law and told her to go. I rang my mum and told her to go, I was stuck at a level crossing just outside Bognor Regis.  I screamed and cried and screamed to Ruth not to leave me, the journey back seemed to take hours. I got there, straight down the corridor with nurses looking at me as if the worst thing had happened and into the room I burst.  Ruth lay there motionless, silent but breathing.  Relief.  Then the tears. I held her close, talking to her. My mum and mother in law were there too. Emotions filled the room. Hours passed, a few friends popped in which was really nice (thanks Rob, Lex, Francis and Nicola). Ruth's dad arrived, Ruth's sister arrived.  Then she opened her eyes. It was a eerie stare no pain but full of fear. She needn't have felt scared. Around 10:30pm Ruth fell asleep and my world fell apart.

Monday, 14 July 2014

*** REMEMBERING RUTH *** TAUNTON EDITION ***

*** REMEMBERING RUTH *** TAUNTON EDITION ***
There will be a second celebration of Ruth's life on the 30th August between 4-6pm at St Andrews Church Hall in Taunton.

All friends and family are welcome.

It would be really nice if you have any photos to share of yourselves with Ruth at a young age (or older!), please write your name and where and when it was taken on the back - this can then be passed onto the children.

More information closer to the time, or contact Sharon Kinloch for anything more urgent.

We look forward to seeing you there, love from Ruth's Family.
xxx

Saturday, 12 July 2014

From Mr Knitting - A day of very strong emotions.  I was absolutely bowled over to see so many friends, in some cases not seen for years by either Ruth or Myself.  Thanks for coming and making the day so special, The Uni friends, the Horsham friends, the Bucks, the Hayllars, the Church friends, the Guiding friends, the Scouting friends, the NCT friends, the Northern Rock friends and the Jungle Tot friends.  Plus anyone else who doesn't really fit into one of those boxes.  Rest in Peace Ruth, well if you can with that railway line running past the end of the field!